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Current programs

Upcoming Events

Programs in Development

Meet the Author at Re-Imagining Pain Through Art: Art Created by Rare Disease Patients

Sunday, October 5  2:00 pm -4:00 pm

 

Featuring:
Sybil Archibald
The Inner Life of the Artist, 900 Monotypes in 900 Days

Mauvareen Beverley, M.D
9 Simple Solutions to Achieve Health Equity

1978 Gallery

1978 Springfield Ave, Maplewood, NJ


Cheese   Mocktails    Coffee

Closing Reception for Re-Imagining Pain Through Art: Art Created by Rare Disease Patients

 A Symphony of Voices: Poetry by Patients with Rare Diseases
Sunday, October 13        2:00 pm - 4:00 pm

Actors and Artists reciting poetry of Rare Disease Patients

Jazz brunch featuring  Greg Burress Production

Cheese Tray      Mimosas and Mocktails   Butter Board
Additional food available for purchase from Sandwhiceria food truck

  

Recent Events

Time to Listen to Sickle Cell Disease in the Emergency Department     

Interactive workshop to help Emergency Department healthcare providers

  • Identify the impact of racial bias in SCD treatment

  • Correct;y diagnose and appropriately treat complications

  • Recognize the emotional, financial, professional and social/behavioral impact of SCD

 

                            

  

Time to Listen to Sickle Cell Disease for Medical and Nursing Students

    Dynamic workshop introducing medical students to the clinical aspects of SCD and providing them with a humanistic perspective of its emotional, psychological, professional, financial and social/behavioral impact.

Walk In My SHOES: Sickle cell Health Outcomes Education Skits

      University of Illinois at Chicago

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