Upcoming Events
Opening Reception for Re-Imagining Pain Through Art: Art Created by Rare Disease Patients
​Kick Off of Garden State Arts Weekend
Thursday, April 24 5:00 pm - 8:00 pm
551 Valley Road
West Orange, NJ
Featuring a presentation about the healing properties of art for patients with chronic disease
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Sponsored by:
Pfizer Rare Disease
www.sicklecellspeaks.com
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Alpha Fit Club
https://alphafitclub.com/pages/livingston
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Symphony of Voices: Staged Poetry Readings from Patients with Sickle Cell
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Friday, April 25, 2025
West Orange Arts Council
551 Valley Road
West Orange, NJ
7:00 pm
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Creative Collage with Carol Jenkins
Saturday, April 26, 2025
West Orange Arts Council
551 Valley Road
West Orange, NJ
1:00 pm to 3:30 pm
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Panel Discussion to Support Sickle Cell Community - Financial Strategies Part II -- Your Career and Sickle Cell
Wednesday, April 30, 2025
5:00 pm to 7:30 pm
South Jersey (Location TBD)
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Generations of Grace: A Sensual Dance Journey for Mothers and Daughters
A transformative workshop designed to be a safe space for healing and connection between mothers and daughters.
West Orange Arts Council
551 Valley Road
West Orange, NJ
Sunday, May 18, 2025
12:00 pm to 4:00 pm
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Blood Drive to Support Sickle Cell Community
Friday, June 13 11:00 am -5:00 pm
Location TBD
Sponsored by Pfizer Rare Disease
www.sicklecellspeaks.com
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Programs in Development
Navigating Romantic Relationships with Sickle Cell Disease
Panel discussion featuring SCD and Relationship Experts discussing the challenges of dating and forming successful relationships while managing SCD
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Recent Events
Dollars and $ense: Financial Strategies for the Sickle Cell Community
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Panel discussion of SCD and disability rights experts about making career decisions, rights in the workplace, and alternate forms of employment for patients with volatile health conditions.
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Meet the Author at Re-Imagining Pain Through Art: Art Created by Rare Disease Patients
Sunday, October 5 2:00 pm -4:00 pm
Featuring:
Sybil Archibald
The Inner Life of the Artist, 900 Monotypes in 900 Days
Mauvareen Beverley, M.D
9 Simple Solutions to Achieve Health Equity
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Closing Reception for Re-Imagining Pain Through Art: Art Created by Rare Disease Patients
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A Symphony of Voices: Poetry by Patients with Rare Diseases
Sunday, October 13 2:00 pm - 4:00 pm
Actors and Artists reciting poetry of Rare Disease Patients
Jazz brunch featuring Greg Burress Production
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