top of page

Time to Listen to SCD
Advisory Committee

Dr. Judy Washington

Dr. Karen Macey-Stewart

Time to Listen to EDS
Advisory Committee

Donna Sullivan.jpg

Donna Sullivan

Patient Advocate; Rare Disease Documentary Producer

Sue Pinkham.jpg

Sue Pinkham

President, The Coalition Against Pediatric Pain

Assoc Chief Medical Officer
Atlantic Health

Jon Rodis.png

Jonathan Rodis

Rare Disease Patient Advocate

Julie Gortze .jpeg

Julie Goertz

Founder/President
Rare New England

Teonna Woolford.jpg

CEO  Sickle Cell
Reproductive Health Education Directive

Teonna Woolford

Brenda Merriweather.jpg

Brenda Merriweather

Research Nurse Specialist, Sickle Cell Branch at The National Heart, Lung and Blood Institute

Mandy David.jpg
Mariah Scott headshot.jpg

Mandy David

Mariah Scott

Epidemiologist and Yale University post-graduate SCD researcher
 

CEO and Principal Consultant

Sickle Smart Consulting

Lametra Scott.jpg
Andre.jpg

​Rare Life Solutions, Community Manger

Andre Marcel Harris

Lametra Scott

CEO Breaking The Sickle Cell Cycle

Foundation, TDOC Director of Pharmacy

Have Questions?

Special Consultant

john ferman.jpg

John Fermin

Founder, Chronic Pain Partners

Dr. Wanda Witten-Shurney

CEO/Medical Director Sickle Cell Disease Association of America, Michigan Chapter

bottom of page