Time to Listen™ to SCD
Advisory Committee
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Dr. Judy Washington
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Dr. Karen Macey-Stewart
Time to Listen™ to EDS
Advisory Committee
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Donna Sullivan
Patient Advocate; Rare Disease Documentary Producer
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Sue Pinkham
President, The Coalition Against Pediatric Pain
Assoc Chief Medical Officer
Atlantic Health
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Jonathan Rodis
Rare Disease Patient Advocate
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Julie Goertz
Founder/President
Rare New England
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CEO Sickle Cell
Reproductive Health Education Directive
Teonna Woolford
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Brenda Merriweather
Research Nurse Specialist, Sickle Cell Branch at The National Heart, Lung and Blood Institute
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Mandy David
Mariah Scott
Epidemiologist and Yale University post-graduate SCD researcher
CEO and Principal Consultant
Sickle Smart Consulting
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Rare Life Solutions, Community Manger
Andre Marcel Harris
Lametra Scott
CEO Breaking The Sickle Cell Cycle
Foundation, TDOC Director of Pharmacy
Special Consultant
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John Fermin
Founder, Chronic Pain Partners
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Dr. Wanda Witten-Shurney
CEO/Medical Director Sickle Cell Disease Association of America, Michigan Chapter